TUESDAY, Sept. 20, 2016 (HealthDay News) — Staff members at nearly one in 10 major U.S. cancer centers — all of which provide palliative care services — weren’t certain such symptom-management and supportive care was actually available there, a new study reveals.
Using an undercover “mystery shopper” approach, the Duke University team also had difficulty getting information about palliative care services during about one-third of calls to 40 U.S. National Cancer Institute-designated cancer centers.
“We were surprised that when we did get in touch with people [at these centers], so frequently we weren’t able to get these questions answered,” said study author Kathryn Hutchins, a fourth-year medical student at Duke, in Durham, N.C.
She said part of the problem accessing palliative care, even at hospitals incorporating it, stems from widespread confusion about the differences between palliative care and hospice care.
Palliative care aims to control symptoms, side effects and stress throughout illness regardless of prognosis, while hospice care is offered only at end-of-life stages.
The study was presented earlier this month at a meeting of the American Society of Clinical Oncology (ASCO) in San Francisco. Research presented at scientific conferences typically hasn’t been peer-reviewed or published, and results are considered preliminary.
In the study, Hutchins and her team used a “mystery shopper” approach — making 160 phone calls to 40 cancer centers on different days, asking about palliative and supportive care needs for a fictitious family member recently diagnosed with inoperable liver cancer.
In nearly 10 percent of calls, staff members gave an answer other than “yes” when asked about the availability of palliative care services there, even though such services were indeed available.
While answers varied, responses included inaccurate statements such as that palliative care was only for end-of-life patients; that no physicians there specialized in symptom management; or that a medical record review would be needed first.
In other responses, the person answering the phone was unsure of either the availability of palliative care or didn’t know what the term meant, the study found.
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